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#HAWMC Lupie Chicks Love Hate Relationship with the Sun

20130411-204927.jpgWinter has finally realized that his season is over! Spring is here; the birds are chirping, the flowers are blooming, sun shining, warm weather (75+ degrees daily), fresh spring/summer fruit is ripe and sweet (I had the best strawberries from Sam’s club last week). I love this Caribbean type weather, the hotter it is the more I enjoy it! What’s there to complain about?? The sun… ooh the sun is NOT my friend. Lupie Chicks such as me should avoid exposure to the sun as much as possible. Photosensitivity is one of the most aggravating triggers of our disease. It doesn’t take much exposure to ensure that we have a reaction. I went out yesterday for lunch with a girlfriend (trying to be “normal”). After lunch we walked around, enjoying the fresh air and the street vendors. Minutes after I returned to my desk, the nauseous feeling, and migraine hit me like an atomic bomb. I could feel myself slowly deteriorating right at my desk. I wanted to crawl under the desk and lay in a fetal position until it passed. I held it together trying not to bring attention to myself. As soon as 5 o’clock came, I was OUT of there, went straight home…. 3 extra strength Tylenol and 2 hours later Advil, I SHUT IT ALL THE WAY DOWN….

sun

For us, sun exposure, even for as little as 30 minutes, causes us to develop migraine headaches, makes us feel nauseas and/or we will experience painful joints. Additionally, exposure to the sun can cause our disease to flare-up (an increase in the activity and symptoms of the disease. This may cause an acute attack of arthritis, pleurisy (chest pain when inhaling), fever, kidney disease, and even epilepsy. Sun sensitivity and UV light sensitivity (photosensitivity) is present in about 90 percent of patients with systemic lupus erythematosus (SLE), 40 to 60 percent of patients with discoid lupus, and about 70 percent of patients with subacute lupus erythematosus.

I had to get back into my “summertime” routine. ** I occasionally, try and move about my day like my counter parts and not like a Lupie Chick, BUT I can’t, it’s not healthy for me. I’m accepting that the few extra minutes it takes me to do the extra things are well worth it at the end of the day.

Skin, after my shower, I start by applying Shea Butter (which has a SPF of about 5) & Coconut Oil (whipped together) as an all over skin moisturizer (body only-not face).

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I then apply sunscreen (to my entire body). My dermatologist recommended Neutrogena Age Shield (SPF 70). Face, I apply Clinique Super City Block Oil-Free Daily Face Protector Broad Spectrum SPF 40, then follow with Clinique stay Matte Sheer Press Powder. You can CLICK HERE to review my complete skin routine (including usage of Clarisonic cleansing brush, hydrocortisone, and daily face cleansing).

420403_3700599594512_871037023_nMe & Mama Naturalista

( I wasn’t being a diva, I was in my summer time protective gear)

Clothing, I wear either long pants, mid sleeve top, with a long sleeve spring/summer sweater or blazer (to cover my arms) or I wear maxi dresses (that come pass my ankles- to cover my legs) along with a summer sweater or blazer. I can’t adorn a hat or scarf to work, but I will wear sunglasses, if I have to go out during the day. On the weekends I will wear a wide brim hat or scarf. I purposefully bring my lunch and avoid going outside until after 2:00pm (when the UV rays aren’t as strong), If I must go outside earlier in the day, I will also use an umbrella to block the sun. Shoes, I typically wear flat ballerina shoes, but most recently I’ve had to opt for pep toe flats (due to Subungual Hematoma).

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Dress  & Sweater Target, Sandals Nine West, Necklace-hand made by Me

I try and wear brighter colors, (it may be my imagination) but it seems as if the dark colors draw more heat. I have to take every precaution necessary to stay cool. The season is here, and we have to be careful and take extra precaution to stay well during these spring/summer months.

Disclaimer: The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
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antidepressant, aunaturale, awareness, blogger, depression, Facebook, Instagram, lupie chick, lupie chick project, lupus, lupus Awareness, lupus foundation, medicine, spoonie, stress, Twitter, zoloft

Not The End Of Me


Not The End Of Me
Who am I?
I don’t know…
Had I become that person I so despise?
My thoughts
Deep, dark, and unrecognizable
Who am I?
Did I just give up?
Given up on life, love, my passions, and everything in between
Who am I?
A cry baby
Weak
Distorted thoughts
State of confusion
Broken Spirit
Negative
Shaken
Stirred
Who am I?
A silent voice and distant eyes
That no one hears my cry’s
Who am I?
Drowning in the depths of sorrow,
with no tears left to cry.
Who am I?
© The Lupie Chick 2013

I’ve been was battling depression for the past 6 months. A lot of stress triggers has occurred with my relocation to Georgia, my employment, my health, and a multitude of other things. I leaned heavily on my sister- friends that keep praying for my recovery and strength to come out of this dark space. I was having uncontrollable crying spells, insomnia, panic attacks, nightmares (when I would finally sleep) and just an overall feeling of failure. I wanted to die. In my opinion, my spirit was already dead. I was in a very dark mind space and I couldn’t see my way out. While at one of my doctor visits, the doctor was asking me questions and I just looked up at him (as if I was possessed by a demon) and blurted out “I really don’t give a fuck right now.. Whatever you want to do is fine with me, I’m ready to go” I stood up and WALKED OUT, crying as I left his office. Later that evening I received a recorded call from Kroger pharmacy telling me my prescription was ready. [Insert demonic look and gas face] “What damn prescription?? I figured it was a wrong number and I ignored the message. 2 days later I received the recorded call again, I was in Kroger ( at Starbucks) and figured I would go over there and tell them to stop calling me ( they were using my day time minutes and I don’t have any to spare). When I reached the counter, the pharmacist acknowledged that I did have a prescription and it was ready. 
ME:  “YOU CAN KEEP IT- I HAVE NO INSURANCE & NO MONEY!”
Pharmacist: “Ms Dugar your cost is $4 and if you have Kroger points I can reduce that to $2” Me: [face twisted and annoyed] fine [mumbling and grumbling]
Pharmacist: Please step to the counseling window
ME: Continue face twisting/mumbling/grumbling
Pharmacist: You have been prescribed Zoloft. Zoloft is known to treat depression, obsessive-compulsive disorder (OCD), posttraumatic stress disorder (PTSD), premenstrual dysphoric disorder (PMDD), social anxiety disorder (SAD), and panic disorder. This medicine is an antidepressant called selective serotonin reuptake inhibitor (SSRI).
ME: [insert, hand on hip, pissed off stance] so what exactly are you saying because I didn’t ask for this?
Pharmacist: Ma’am you may want to call your physician, this prescription was called in
ME: Yeah, I’ma call him [pulls out phone and call doctor office]
After calming down a little and speaking with my physician, I now understand that his prescription wasn’t an insult to my mental stability; it was care, concern, and very well NEEDED! My physician began to tell me he sensed that I was stressed and I was displaying signs of depression. After finishing up the call, I went home, got on the Internet to do additional research.“Between 15 and 60 percent of people with a chronic illness will experience clinical depression. This may be brought on by lupus, by the various medications used to treat lupus, and/or by any of the factors and forces in a person’s life that are not related to lupus. For reasons that are not entirely understood, this type of depression is often experienced by people with chronic disease.”Lupus Foundation of America
 I encourage anyone that exhibits any of the following to consult with a physician.
·  Feelings of helplessness or hopelessness
·  Sadness
·  Crying (often without reason)
·  Insomnia or restless sleep, or sleeping too much
·  Changes in appetite leading to weight loss or weight gain
·  Feelings of uneasiness, anxiety, or irritability
·  Feelings of guilt or regret
·  Lowered self-esteem or feelings of worthlessness
·  Inability to concentrate or difficulty thinking
·  Diminished memory and recall
·  Indecisiveness
·  Lack of interest in things formerly enjoyed
·  Lack of energy
·  General slowing and clouding of mental functions
·  Diminished sexual interest and/or perfor­mance
·  Recurrent thoughts of death or suicide
I’ve exhibited 15 out of the 16 signs above. As a friend or a family member- please do not assume that a person is having a pity party or just “need to get over it”. There were moments I wanted to die, and a friend response to me was “oh Sixx, come on now, you’re having a pity party”. Depression is very serious and HARD to overcome. I’m not 100% recovered (even with the help of Zoloft).  I take it day by day-sometimes-minute by minute. When I say THANK YOU [to my my inner circle]-it’s not just 2 words. I know I have a praying circle around me-and you’re prays has kept me covered. [ praise & testimony]
  • Between 15 and 60 percent of people with a chronic illness will experience clinical depression.
  • Clinical depression may be a result of the ways in which lupus physically affects your body.
  • Some of the medicines to treat lupus—especially corticosteroids such as prednisone (and at higher doses of 20 mg or more)—play a role in causing clinical depression.
  • Clinical depression may be a result of the continuous series of emotional and psychological stressors associated with living with a chronic illness.
  • Clinical depression may be a result of neurologic problems or experiences unrelated to lupus.
  • Clinical depression also produces anxiety, which may aggravate physical symptoms (headache, stomach pain, etc.).
  • Two common feelings associated with clinical depression are hopelessness and helplessness. People who feel hopeless believe that their distressing symptoms may never improve. People who feel helpless believe they are beyond help—that no one cares enough to help them or could succeed in helping, even if they tried.
 Keep in Touch

Twitter: @lupieeChick
Instagram: @naturally_lupie
Email: lupiechick@gmail.com
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I was nominated for a Health Activist Award!!!!

I was nominated for a Best in Show: Community Award by Wego Health for
The Lupie Chicks
Please help endose my nomination Click Here: 

 
my URL is http://thelupiechick.blogspot.com/ or naturally_lupie ( instagram) takes 5 mins to vote!
 
Voting will end on December 31, 2012
 
Help me continue to bring awareness to Lupus one chick at a time!!!!
 
 
Twitter: @lupieeChick
 
Instagram: @naturally_lupie
 
 
Email: lupiechick@gmail.com
 
**click link above to be directed to team page**

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DAY 2: Advice For A Newly Diagnosed Lupus Patient #NHBPM

Being diagnosed with lupus can bring about a flurry of emotions. You may feel upset or nervous about what the new diagnosis means for your future. You may be angry at the idea that your life may change. You may even feel happy that after some time of not feeling well, you finally have a name for what was ailing you. Finally, your condition has a name. Each of these emotions is normal, and no reaction is the right one. In fact, you may feel all of these emotions at some time or another.

But beyond your emotional reactions, you may be wondering what your next steps should be. Below are some tips for moving forward after being diagnosed with lupus.

1. Get a second opinion. Before you begin your journey into chronic health care, you want to make sure you are heading down the right path.

I didn’t get a 2nd opinion when I was first diagnosed. My dermatologist originally diagnosed me (I had the butterfly rash across my face, and lesions on my neck and under my breast). After she performed her examination she was “certain” it was Lupus and referred me to a rheumatologist & neurologist who ran additional test and confirmed that I had Lupus. Honestly, that was the best day of my life. It answered a lot of questions and FINALLY I KNEW that what I was experiencing wasn’t my imagination. After getting over the initial shock, I was ready to battle & WIN!!!!!

2. Bring a friend or family member to be an advocate for you. You may need to have some tests done and see many doctors in the beginning. Having someone else there to take notes, ask questions, or just be an emotional support is very important. It is normal to forget a question, or not remember important information after a doctor visit. It is also great to have a supportive person with you who can hold your hand, distract you, make you laugh, or just listen.
I have never had a friend or family member come with me to any of my appointments (well my husband has attended 2 or 3 ). There were times when I wanted “support” and then there were times when I was happy I was there alone. From my experience, I have found that when people don’t understand what is happening they can be very judgmental. Going through the motions and of trying to come to grips with everything- JUDGEMENT WAS THE LAST THING I NEEDED OR WANTED!

3. Start a notebook or a folder for your healthcare. Take notes and ask for copies of your test results. Take time to actually read your tests and learn what they mean, or ask your doctors. Keeping a record now is a great start. It’s always a much bigger job to back track and get records that you may need in the future. These records and notes can be helpful when you’re seeing multiple doctors, dealing with insurance companies, applying for disability, etc.
Yes, yes, yes!!!!! I started experiencing a “brain fog” and I would literally forget what someone told me only minutes previous. It’s imperative that you keep records and minimum keep notes or download one the apps on a smart phone that will store your medical records and or notes for you. I remember an incident when my rheumatologist  had prescribed me a medicine that counter acted something the neurologists prescribed me, I ended up with massive migraines and I wanted to die (I was in that much pain). Once I gathered everything out of  my cabinets, purse, and night stand, I  went back to the doctor, showed them everything I was taking, and they figured out exactly what the culprit was. From that point forward I have kept impeccable notes and I always keep a record of my prescriptions ( dosages, strength, etc).  

4. Do your research. After being diagnosed with lupus, you will soon hear all kinds of words that you may not have heard before. Names of medications, secondary diagnoses, and symptoms can be overwhelming and scary. A great way to combat this feeling is to learn as much about lupus as you can and get yourself familiar with the lingo. This will help empower you in conversations with doctors and nurses. When you know what they are talking about you can ask appropriate and necessary questions. WebMD is a great place to start on your quest to educate yourself. There are many articles, posts, and videos on the site that are very informative.
I can’t say this ENOUGH!!!!! DO YOUR OWN RESEARCH!!!!!! I’m often asked for advice relative to Lupus. While I appreciate strangers, family & friends comfort level to ask me for advice ( treatment, & diagnosis), I refrain from giving medical advice. It’s not that I don’t care or I don’t want to share information, I’m NOT A PHYSICAN. Legally I cannot provide medical advice. I’m more than willing to share what has/hasn’t worked for me, but that information should not be used in place of a diagnosis or treatment plan.   I have this disclaimer at the end of every post The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan. I encourage all of you to always consult with a physician before starting/stomping any Treatment plan, Nutrition (eating) regime, and Fitness plan. If you are looking for information and or support, outside of speaking with your doctor, I HIGHLY suggest that you become a member of the Lupus Foundation of America Chapter (in your state). The Lupus Foundation of America offers symposiums, teleconference calls, empowering events and the largest support group network.

5. Ask questions!!! Do not be afraid to ask questions, even questions you deem silly or unimportant. If you feel any kind of change in your symptoms, tell your doctor. I cannot stress this enough. You are a partner with your doctor in your healthcare. You need to take an active role. You are the only person who knows your body best, so if something feels off, say so.
You have to be your own advocate and cheerleader in this fight!!!!! No matter how minor the question may seem, ASK IT!!!! Make no assumptions!!!! Make sure that the doctor/nurses are listening and providing you with the approriate answers. You must be active and aggressive in your treatment  plan !!!!
Tips Provided by Web MD  ( my responses are highlighted in purple)

Until Next Time,
Live ~ Laugh ~ Love
 ¸.· ´¸.·*´¨) ¸.·*¨)
(¸.·´ (¸.·’   The Lupie Chick
Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC
The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
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Day 1: Why I Write About My Health #NHBPM

When I was first diagnosed with Lupus, I instantly took to the internet. I wanted to arm myself with as much information as possible. I was prepared to be over whelmed and immersed in everything regarding Lupus.  I was alarmed by the amount of “repetitive” information that was available. Everything was a repeat and very “ text book” .  I was clear what Lupus is (was), but I wasn’t clear as to how people lived with Lupus. What a day was like for a Lupie Chick .  How Lupus affected friendships/relationships/marriages.  How Lupus affected people’s mental state.  How Lupus affected peoples emotional/physical/sexual health. I had LOTS of questions.  I could not find what I was looking for; nothing was really answering what I wanted to know.  (For me), I needed visual, clear, concise answer(s). Based on the lack of information available, I decided to write from my perspective and keep it REAL & RAW (no sugar coating). If I was in pain I wanted to describe or show pictures of the type of pain or the intensity level of the pain. I was going to show my bare face (without makeup) and talk about the scares, the nasty remarks, and assumptions people make about you when you have an invisible disease. I wanted to provide an outlet for my fellow Lupie Chicks to know that they were not alone and we could cyber space high five each other.
I will never forget my first posting telling the world, I Have Lupus; people were calling me with tears in their voice telling me I had taken them on an emotional roller coaster. I heard from friends I havent from in years (more than 10).  It wasn’t my intention to make anyone cry or become upset, I wrote from the heart.  I wrote as if I was speaking to my girlfriends or family. I’ve found that my ability to be open and my style of writing works for the type of platform I’m building.
I’ve started posting daily pictures of myself saying Hello /Good Morning to my fellow lupies. If I miss a day, people will inbox me on Facebook or text me and say “where is our daily picture?”  I never knew that a simple picture would/could make someone’s day, or provide a little encouragement.  
Not too long ago, I received a mention on Twitter that said “because of the Lupie Chick I know more than I ever thought I could or wanted to know about Lupus and the struggle”.  I don’t know this young lady, never knew that she read my blog or tweets. I received a message from another young lady telling me “because of your blog I now know how to be a better friend “. I don’t get many (any) comments on my blog, and I wasn’t positive if anyone was reading my blog, UNTIL  I get the random messages, text,  or tags of people wearing purple, or mentions of “ The Lupie Chick”.  Just the other day, my hands had swollen and I was in severe pain. I posted a picture on line and a young lady asks “what’s lupus?”  I was in too much pain to type (reply) on my mobile, but I fought through and took a screen shot of the Lupus Foundation page explaining what Lupus is. Even in my mist of a challenge I was able to educate someone on this little known invisible disease.  I’m so honored and humbled to be able to do what I do, and I’m MORE honored and humbled to my readers and audience who help spread awareness.   I know that I will never stop writing, I will never stop bringing awareness, and I will never keep quiet – This is WHY I Write About My Health!
Until Next Time,
Live ~ Laugh ~ Love
Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Atlanta, aunaturale, autoimmune, diabetes, domestic violence, healthy, Iyanla Vanzant, life, lupie chick, lupus, lupus Awareness, majestic divas, mz sixx, peace, purple, womens health

Are you living in PEACE or PIECES??



Painting by Yvette Crocker
Yesterday I spoke to an ex (whom I haven’t spoken to or seen in more than 17 years). He seems so broken dealing with a lot of heath issues (specifically diabetes) and the lost of his immediate family members. He had been dealing with a lot of guilt from situations that occurred during our relationship and had remained in that moment. Listening to him made me realize that we have life choices.  We can live in PEACE or PIECES! I realized that I choose peace while he had chosen pieces. Yes, I know it is very difficult and hurtful to lose all of you immediate family members, and it’s also difficult to live with an illness (the same illness that had taken the lives of his family), BUT you have to choose PEACE. Choose to deal with whatever is before you and GO THROUGH IT (not around it).
I think back on all the test that I’ve had to take to have this testimony I speak about today. I have no shame and no silence.  I survived sexual abuse, domestic violence abuse, the challenges of being a teenage parent, betrayal, mis fortune, financial instability, unemployment, and now fighting for dear life to beat Lupus. I FOUGHT and will CONTINUE to fight EVERYDAY for the rest of my life.  We all have a responsibility to live our best life (whatever that may be). I know that everything that has happened to me happened for a reason to make me realize just how AWESOME I really am. I’m much stronger than I ever knew or imagined I could be. Do I have fear-of course I do.. but I have taken lemons (my fears & life challenges) and turned them into champagne (success)! This is MY LIFE- and whatever the devil has taken from me- HE CAN KEEP IT- BECAUSE MY GOD HAS SOMETHING BETTER FOR ME!!!!! I choose to live in PEACE!
To all of you that read this post- I ask you- how you will live the rest of your life? In PEACE or PIECES????

Until Next Time Fam

Live.. Love.. Laugh…

The Lupie Chick

Stay Connected
Instagram:@naturally_lupie
Facebook: www.facebook.com/mzSixx
Twitter: @lupieeChick & @AuNaturaleDC

The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

Atlanta, autoimmune, beauty, DC, Falcons, Grandmother, lupie chick, lupus, lupus Awareness, mz sixx, natural hair, purple

Celebration of Life (My Life)



Me- 41st Birthday



Yesterday was my 41st Birthday (yes, I’m in my forties honey… I don’t look a day over 30 -at least that’s what a twitter follower told me J lol..lol..) . Yesterday I took the time to reflect and appreciate the wonderful gift of life. This time last year I was still dealing with the diagnosis of Lupus and trying to figure out just how I would live. Besides a flare up and depression, what should have been a milestone celebration (my 40th birthday) was anything but. This year I decided things would be different. I’ve grown to accept that I will forever have lupus BUT Lupus won’t have me. I will NOT stop living. I will (and have) become an advocate and a glimmer of hope for all my lupie sistas who are still fighting. When I awoke yesterday (mainly from Face Book notifications – You guys were on it! Mini me had the first notification at 11:59 p.m. Saturday night), I immediately knelt down and THANK THE LORD for allowing me to live and survive another year-despite Lupus.



My New Grand daughter Mailia Elizabeth Fowler



I’m in a new city (I relocated to Atlanta), I became a grandmother for the 2nd time (hi Malia), my projects and businesses are thriving, I’m happy and BLESSED. I knew I would not sit around sad or depressed on my birthday this year. I was going to get dressed, put on makeup and rock out like only Mz. Sixx can. I decided I would get out of my comfort zone and I would start crossing a few things off my “50 before 50” list.



#My View- after the Falcons beat The Oakland Raiders 23-20



Yesterday afternoon, I attended my first live NFL game yesterday (Atlanta Falcons vs. Oakland Raiders). It was very exciting to sit in the executive suite (hosted by Verizon Wireless). The view was awesome- nothing like watching it on TV. I felt like I could reach right over and touch the players. I could see every move, every play, hear every cuss word (lol) and actually understood what was going on. I felt myself cheering and screaming like a Justin Beiber Fan (sweating out my freshly blow dried natural hair) cheering for the falcons to make a touchdown. For the first time I think this year, I had on my infamous 5 inch stiletto ankle boots, leather legging, and an Asian inspired top. Some of the executives kept touching my pants & rubbing my legs (Saying ummmm ” I like those” looking at me like I was a pulled pork sandwich). If I was conceited I would swear they were checking for me…lol..lol.. My co workers surprised me with a cake, they sung Happy Birthday, and we DRANK LOTS OF WINE ( lol..lol). During half time, the band played the wobble- and YOU KNOW YA GIRL GOT HER WOBBLE ON!!!!!! The cheerleaders did a skit and the players do a chat- and you RISE UP (#ayeeeee) #Go Falcons, it was like a party (or maybe I turned it into one …lol..lol..). Nonetheless, this chica had a ball. Food, wine, good company, and the home team won-made for an enjoyable afternoon.



Me-Rocking my Leather Leggings



It felt good to get out-breathe fresh air- and celebrate MY LIFE… MY WAY! The celebration hasn’t stop and it won’t stop (in my Diddy voice.. “Won’t stop..Can’t stop”). I made a vow to myself to live MY best life and KEEP THE CELEBRATION GOING!!!!!!
** please peep the #purpleEverything #LupusAwareness-EVERYDAY**



The infamous Bathroom Pic ( in the Executive Suite @ The Georgia Dome)



Until Next time fam,
Live.. Love.. Laugh..
The Lupie Chick TM

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