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#HAWMC Lupie Chicks Love Hate Relationship with the Sun

20130411-204927.jpgWinter has finally realized that his season is over! Spring is here; the birds are chirping, the flowers are blooming, sun shining, warm weather (75+ degrees daily), fresh spring/summer fruit is ripe and sweet (I had the best strawberries from Sam’s club last week). I love this Caribbean type weather, the hotter it is the more I enjoy it! What’s there to complain about?? The sun… ooh the sun is NOT my friend. Lupie Chicks such as me should avoid exposure to the sun as much as possible. Photosensitivity is one of the most aggravating triggers of our disease. It doesn’t take much exposure to ensure that we have a reaction. I went out yesterday for lunch with a girlfriend (trying to be “normal”). After lunch we walked around, enjoying the fresh air and the street vendors. Minutes after I returned to my desk, the nauseous feeling, and migraine hit me like an atomic bomb. I could feel myself slowly deteriorating right at my desk. I wanted to crawl under the desk and lay in a fetal position until it passed. I held it together trying not to bring attention to myself. As soon as 5 o’clock came, I was OUT of there, went straight home…. 3 extra strength Tylenol and 2 hours later Advil, I SHUT IT ALL THE WAY DOWN….

sun

For us, sun exposure, even for as little as 30 minutes, causes us to develop migraine headaches, makes us feel nauseas and/or we will experience painful joints. Additionally, exposure to the sun can cause our disease to flare-up (an increase in the activity and symptoms of the disease. This may cause an acute attack of arthritis, pleurisy (chest pain when inhaling), fever, kidney disease, and even epilepsy. Sun sensitivity and UV light sensitivity (photosensitivity) is present in about 90 percent of patients with systemic lupus erythematosus (SLE), 40 to 60 percent of patients with discoid lupus, and about 70 percent of patients with subacute lupus erythematosus.

I had to get back into my “summertime” routine. ** I occasionally, try and move about my day like my counter parts and not like a Lupie Chick, BUT I can’t, it’s not healthy for me. I’m accepting that the few extra minutes it takes me to do the extra things are well worth it at the end of the day.

Skin, after my shower, I start by applying Shea Butter (which has a SPF of about 5) & Coconut Oil (whipped together) as an all over skin moisturizer (body only-not face).

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I then apply sunscreen (to my entire body). My dermatologist recommended Neutrogena Age Shield (SPF 70). Face, I apply Clinique Super City Block Oil-Free Daily Face Protector Broad Spectrum SPF 40, then follow with Clinique stay Matte Sheer Press Powder. You can CLICK HERE to review my complete skin routine (including usage of Clarisonic cleansing brush, hydrocortisone, and daily face cleansing).

420403_3700599594512_871037023_nMe & Mama Naturalista

( I wasn’t being a diva, I was in my summer time protective gear)

Clothing, I wear either long pants, mid sleeve top, with a long sleeve spring/summer sweater or blazer (to cover my arms) or I wear maxi dresses (that come pass my ankles- to cover my legs) along with a summer sweater or blazer. I can’t adorn a hat or scarf to work, but I will wear sunglasses, if I have to go out during the day. On the weekends I will wear a wide brim hat or scarf. I purposefully bring my lunch and avoid going outside until after 2:00pm (when the UV rays aren’t as strong), If I must go outside earlier in the day, I will also use an umbrella to block the sun. Shoes, I typically wear flat ballerina shoes, but most recently I’ve had to opt for pep toe flats (due to Subungual Hematoma).

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Dress  & Sweater Target, Sandals Nine West, Necklace-hand made by Me

I try and wear brighter colors, (it may be my imagination) but it seems as if the dark colors draw more heat. I have to take every precaution necessary to stay cool. The season is here, and we have to be careful and take extra precaution to stay well during these spring/summer months.

Disclaimer: The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
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May 11th Lupus Awareness Fact

May 11: African Americans, Hispanics/Latinas, Asians and Pacific Islanders, and Native Americans are diagnosed with lupus two or three times more frequently than Caucasians; however, lupus affects people of all races and ethnicities. Lupus can be an expensive disease. The average annual cost to provide healthcare for a person with lupus is $12,643, and rises to nearly $21,000 when lost work productivity is included.



Click Here to learn more about Lupus

Click Here to Donate to Team ” Lupie Chicks”

Click Here to Join Team Lupie Chicks at the Walk for Lupus in Sept 29 at Druid Hill Park, Baltimore, MD

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May 10th- World Lupus Day

About World Lupus Day



World Lupus Day began with a Proclamation 8 years ago by an international steering committee representing lupus organizations from 13 different nations when they met in Eaton, United Kingdom to organize the first observance of World Lupus Day. The Proclamation is a call to action for governments around the world to increase their financial support for lupus research, awareness and patient services.

The Proclamation reflects the emerging issues that people with lupus around the world must face every day. The Proclamation serves to give a single voice to all individuals affected by this devastating and debilitating chronic disease.

Lupus is a chronic autoimmune disease that can affect any part of the body. An estimated 5 million people around the world have lupus.



Most people know very little about lupus. But by working together we can change that. Imagine the impact we can have if we all help raise worldwide recognition of lupus, assuring earlier diagnosis, better treatments, and greater support for people everywhere! Join Julian Lennon and pledge to raise awareness for lupus.


Click Here to sign the Lupus Awareness Pledge

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My desire to grow my hair to waist length

Hello Loves-I’m back!!!!!!!

It has been awhile since I’ve updated my blog. All or most of you are aware that I’ve been fighting the autoimmune disease Lupus. I’m starting to “get my life” back as I once knew it and get back into some of the things i love- one of them BLOGGING!

During the last 8 months, my lupus flare up has had an impact on my hair. I’ve experienced extreme shedding, and my texture has changed in some areas ( especially in the middle of my head). I have lots of single strand knots (ouch!) and my lovely curls have begun to take on a wave pattern (more than a curly pattern). I’ve never really cared too much about the length of my hair until I started to see it fall down the sink at every washing. Running my fingers through my hair has become a thing of the past ( as handfuls of hair shed daily). I’ve since decided to challenge my self to reduce (stop) the shedding, and grow my hair to ” waist length”.

Have you ever seen waist length hair-ITS BEAUTIFUL!!!!!!!! Some of my favorite You Tubers are waist length ( Kimmy Tube, Urban Bush Babes, Long Hair Don’t Care, to name a few). BEAUTIFUL!!!!!!

**Below is a chart to show the different hair lengths**

Picture of hair after it was washed, deep conditioned and flat ironed using Crisco ( in the blue can). My goal wasn’t to have super straight hair- just straight enough to do a length check. I’m #teamNoHeat- so the mere thought of applying heat to my hair frightens me.

Picture after a trim


I then put in 6-8 flexi rods ( mix of orange and red rods) to achieve a curly look.

Picture after removal of the flexi rods & (finger) styled


I’m introducing a new (simpler) routine to maintain length and (hopefully)continue hair growth

Co-washing- This means only using a conditioner to wash my hair eliminating the shampoo. I’ve always done this, and it has worked GREAT for me. My co wash regimen is often done on Sunday, Wednesday, and Friday.

Deep Conditioning/Pre Poo- For me this provides an extra boost in moisture, I do not buy fancy deep conditioning products because you guys know I’m the kitchen beautician!!!! My pre poo consist of honey and olive oil warmed, part hair in 4 sections, apply (heavily) to each section of hair ‘BEFORE” you shampoo. My deep conditioner (recipe) is 2 jars of stage two banana baby food, 1-2 tablespoons of (raw) honey, 1-2 teaspoons of olive oil or grape seed oil. Part hair into 4 sections, apply to each section ( concentrating on the ends) cover with a conditioning cap minimum of 30 minutes ( I usually go an hour).

Sealing-I had stopped sealing my ends for a while ( just was too lazy) or exhausted. I normally use an even mix of castor oil, coconut oil, and safflower oil ( melted and mixed together in a bottle and apply to my ends nightly). ** I also tuck my ends under a satin scrunchie at night. **

Leave In Conditioner- I apply leave in conditioner EVERYDAY ( with a light hand) to my hair. I mix my own ( distilled water or rose water, aloe vera juice, coconut milk, grape seed oil, and essential oils). I mist my hair “before” i re apply my twist or when I take my hair down in the morning- I will mist it lightly.

Diet-I’m now on a gluten free diet, and transitioning to vegetarian lifestyle. Diet is very important to those that suffer with lupus and I know for overall health and hair growth it start from the inside. ** I’m currently doing the New Moon Detox (fast) for 3 days and upping my water intake to 107 ounces a day ( half my body weight)**

Have you established any hair goals for 2012? If so please share…

Disclaimer: These images may not be reproduced, copied, transmitted or manipulated without the written permission of Mz. Sixx. Use of any image as the basis for another photographic concept or illustration (digital, artist rendering or alike) is a violation of the United States and International Copyright laws. All images are copyrighted © 2012 – Au’Naturale by Mz. Sixx

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My Name is Mz. Sixx and I have Lupus

Where do I start…

My Name is Mz. Sixx and I have Lupus

that was very hard for me to say 😦



Face Fully Made Up w/ Dermablend

Some of you are familiar with my skin troubles that I’d been experiencing for over a year. I would try different things, some worked for a while, and some never worked at all. Growing more and more frustrated and embarrassed by my skin, I went to get my prescription re filled for a facial cream my dermatologist had prescribed to me. Hoping that would be my saving grace.


Partial Makeup

As I began any normal day, I went to CVS hoping to come out with a tube of some magical cream that would clear up my adult acne (the diagnose I’d previously been given). The pharmacist informed me that my prescription required authorization. When he called to get authorization- the dr. instructed him not to fill it and have me come in his office. I thought to my self- “great, he gonna give me the sho nuff good stuff to clear this up”. I made an appointment to see the doctor the next day- never mentioning it to my husband or friends- I wasn’t the least bit concerned. I went to work late so that I could see the doctor and drop my prescription off as soon as possible.

The doctor enter the room and starred straight at my nose [insert gas face right here].

Naked Face- No Makeup- Its hard to see in the pics, but I also have a red bumpy rash


As soon as I noticed the way he was looking at me, I got scared. He began to “drill” me about what been happening to my face. He then said that my face had gotten worse since my last visit and he was concerned. CONCERNED- did he just say he was CONCERNED??? – I obviously knew my face had gotten worse- what started out as one dark spot on my forehead was now covering my nose and had spread to my checks. He did a biopsy on my nose area and took blood. I’m really anxious and nervous at this point. I’d only known people to need a biopsy when they thought they had cancer. That “c” word scares me to no end. I silently cried many days and nights, anxiously awaiting the results. The nurse called me and asked that I come to the office as soon as possible. My first word was “WHY” what’s the problem?? She wouldn’t say. She only would say that we need to discuss treatment with you- TREATMENT??? TREATMENT FOR WHAT??? Now, I’m shouting and crying at the same time. She still wouldn’t reveal anything to me and advised that I come to the office as soon as possible. I’m sure anyone else would have ran to the office, I didn’t. I did not want to hear that I had cancer. Nope, I was convincing myself and saying Hail Mary as many times as I could over the course of two days. The doctor called me wanting to know why hadn’t I come to the office and when was I coming. (Sigh), I was being a real bitch- I just out right said. LOOK, I’M NOT PAYING YOU A CO PAYMENT FOR YOU TO TELL ME I HAVE CANCER- YOU CAN TELL ME THAT OVER THE PHONE! He said “who told you, you have cancer”? You don’t have cancer- but I need you to come in the office. I’m sure he said more, but I blanked out of the conversation when he said I didn’t have cancer. So I took my lunch break and went by the office. I was calm, cool, and collected- because I thought I had just dodged a death sentence. As soon as he walked in, I began to apologize for being such a baby and bitch at the same time. He accepted my apology, and sat down, and asked me if I was familiar with Lupus. Lupus?? Ummm……..Not really- why, I asked. He hands me a bunch of pamphlets and goes on to explain to me that I have Lupus. Lupus is a chronic autoimmune disorder that can affect virtually any organ of the body. In lupus, the body’s immune system, which normally functions to protect against foreign invaders, becomes hyperactive, forming antibodies that attack normal tissues and organs, including the skin, joints, kidneys, brain, heart, lungs, and blood. Lupus is characterized by periods of illness, called flares, and periods of wellness, or remission. I have Discoid lupus erythematosus, which mainly affects the skin. The symptoms of this form of lupus include a rash on the face, scalp, or elsewhere. The rash may last for days or years, and can recur.


I said okkkkkkkkkk, so what I gotta do to get rid of it? He then said, he can treat the symptoms (from flare ups) but there is no cure. WAIT- STOP THE DAMN PRESS- DID YOU SAY NO CURE?? I rose up outta that chair and honestly I was MAD- the kind of mad, where you’re ready to fight. I’m not sure if I was mad at the doctor, myself, or the world, but I was furious, and I felt betrayed! (I know it doesn’t make sense-but that’s how I felt). After 20 minutes of asking multiple questions and answering questions, and FINALLY having a reason for the shortness of breath, the hot flashes, sweating, headaches, fatigue, anemia, gastrointestinal problems, weight gain/lose, insomnia, bouts with depression, and the skin rashes- it was making sense now.

I went home and instantly went to the internet so that I could educate myself on Lupus- 2 days later my brain was fried and I was full of questions. I slowly began to tell my family- starting with my husband, my kids, and my siblings. My niece who is a RN, said to me” I knew it, I was waiting on you to say something”. My sister said, she knew something was wrong because of my skin, but nonetheless I was going to be ok.

I’m a fighter and I don’t quit. I’ve been debating whether or not I should tell anyone. Honestly- I was embarrassed. I no longer feel embarrassed or ashamed. I HAVE LUPUS DAMNIT! It’s not the scarlet letter, and I will not allow it to take over my life! I’m surrounding myself with other people who are living with Lupus, and educating myself as much as I can on the disease.

My blog will now included my battles and victories as Lupus is now a part of life. I’m not going anywhere ya’ll and I’m determined to whip Lupus A$$

Disclaimer: NONE OF YA’LL BETTER NOT START TREATING ME LIKE I’M SICK, OR WE WILL BE BEEFING!!!!!! Love ya much!!!!!