#HAWMC, au naturale, beauty, beauty products, castor oil, challenge, chronic autoimmune, clarisonic, co-wash, exfoliate, face, face wash, facial, lupie chick, lupie chick project, lupus, lupus Awareness, lupus foundation, natural, natural hair, neutrogena

#HAWMC Lupie Chicks Love Hate Relationship with the Sun

20130411-204927.jpgWinter has finally realized that his season is over! Spring is here; the birds are chirping, the flowers are blooming, sun shining, warm weather (75+ degrees daily), fresh spring/summer fruit is ripe and sweet (I had the best strawberries from Sam’s club last week). I love this Caribbean type weather, the hotter it is the more I enjoy it! What’s there to complain about?? The sun… ooh the sun is NOT my friend. Lupie Chicks such as me should avoid exposure to the sun as much as possible. Photosensitivity is one of the most aggravating triggers of our disease. It doesn’t take much exposure to ensure that we have a reaction. I went out yesterday for lunch with a girlfriend (trying to be “normal”). After lunch we walked around, enjoying the fresh air and the street vendors. Minutes after I returned to my desk, the nauseous feeling, and migraine hit me like an atomic bomb. I could feel myself slowly deteriorating right at my desk. I wanted to crawl under the desk and lay in a fetal position until it passed. I held it together trying not to bring attention to myself. As soon as 5 o’clock came, I was OUT of there, went straight home…. 3 extra strength Tylenol and 2 hours later Advil, I SHUT IT ALL THE WAY DOWN….

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For us, sun exposure, even for as little as 30 minutes, causes us to develop migraine headaches, makes us feel nauseas and/or we will experience painful joints. Additionally, exposure to the sun can cause our disease to flare-up (an increase in the activity and symptoms of the disease. This may cause an acute attack of arthritis, pleurisy (chest pain when inhaling), fever, kidney disease, and even epilepsy. Sun sensitivity and UV light sensitivity (photosensitivity) is present in about 90 percent of patients with systemic lupus erythematosus (SLE), 40 to 60 percent of patients with discoid lupus, and about 70 percent of patients with subacute lupus erythematosus.

I had to get back into my “summertime” routine. ** I occasionally, try and move about my day like my counter parts and not like a Lupie Chick, BUT I can’t, it’s not healthy for me. I’m accepting that the few extra minutes it takes me to do the extra things are well worth it at the end of the day.

Skin, after my shower, I start by applying Shea Butter (which has a SPF of about 5) & Coconut Oil (whipped together) as an all over skin moisturizer (body only-not face).

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I then apply sunscreen (to my entire body). My dermatologist recommended Neutrogena Age Shield (SPF 70). Face, I apply Clinique Super City Block Oil-Free Daily Face Protector Broad Spectrum SPF 40, then follow with Clinique stay Matte Sheer Press Powder. You can CLICK HERE to review my complete skin routine (including usage of Clarisonic cleansing brush, hydrocortisone, and daily face cleansing).

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( I wasn’t being a diva, I was in my summer time protective gear)

Clothing, I wear either long pants, mid sleeve top, with a long sleeve spring/summer sweater or blazer (to cover my arms) or I wear maxi dresses (that come pass my ankles- to cover my legs) along with a summer sweater or blazer. I can’t adorn a hat or scarf to work, but I will wear sunglasses, if I have to go out during the day. On the weekends I will wear a wide brim hat or scarf. I purposefully bring my lunch and avoid going outside until after 2:00pm (when the UV rays aren’t as strong), If I must go outside earlier in the day, I will also use an umbrella to block the sun. Shoes, I typically wear flat ballerina shoes, but most recently I’ve had to opt for pep toe flats (due to Subungual Hematoma).

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Dress  & Sweater Target, Sandals Nine West, Necklace-hand made by Me

I try and wear brighter colors, (it may be my imagination) but it seems as if the dark colors draw more heat. I have to take every precaution necessary to stay cool. The season is here, and we have to be careful and take extra precaution to stay well during these spring/summer months.

Disclaimer: The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her health care provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.
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Eden Body Works-Peppermint Tea Tree Shampoo Product Review

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Manufacturer: Eden Body Works

Type: PEPPERMINT Tea Tree Shampoo

Size: 8 fl.oz

Price: $8.50

Rating: 4

Attributes: This invigorating shampoo increases scalp circulation for a refreshed, renewed feeling. Removes all traces of dirt and oil build up. Formulated to help alleviate dry scalp with the use of pure peppermint botanicals. (Taken from the Eden Body Works website)

Ingredients: Water, Sodium Lauryl Sulfoacetate, Disodium Laureth Sulfosuccinate, Lauramidopropylamine Oxide,  Methyl Gluceth-10, PEG-7 Glyceryl Cocoate, Hydroxypropyl Guar,  Aloe Barbadensis Leaf Extract, Hydroxypropyltrimonium Honey, PEG-150 Distearate, Tocopheryl Acetate, Sodium Chloride, Disodium EDTA, Citric Acid, Panthenol, Peppermint (Mentha Piperita) Oil,  Tea Tree (Melaleuca Alternifolia) Leaf Oil, Phenoxyethanol (insert-hand cramp, had to type that out due to their ingredients being a pic instead of typed..*sigh*)

The Good: My hair felt clean as if I had used a clarifying shampoo. My hair did not feel striped once I rinsed it. I used a product sample I’d received from a hair event, the sample contained enough shampoo for me to wash my hair twice (I have a TWA) while in the shower.

The Bad: The shampoo lathers really well, A LOT. I have become accustom to sulfate free shampoos, and am not use to a lot of lather. Although my hair did not feel striped, it didn’t feel as moisturized as when I use Shea Moisture’s Raw Shea Butter Moisture Retention Shampoo. I did not feel the “tingle” many  spoke about when using this shampoo.

Overall: It’s a good product, and personally I will continue to use this shampoo, but as a clarifying shampoo. I will opt for the more moisturizing Shea Moisture shampoo or my sulfate free brands for daily/weekly use.

au naturale, aunaturale, lupie chick, lupus, miss naturale, miss sixx, mz sixx, natural, natural hair, Uncategorized, womens health

#HAWMC Long Hair Dont Care… Short Hair Dont Either

Lupus Related Hair Loss

Lupus hair loss can be caused by the disease itself, as the immune system destroys hair follicles, or by medicines such as prednisone and immune system-suppressants—in which case hair loss often stops once the medicine is stopped. Hair may fall out in strands, or in clumps with the slightest pull, and sometimes it just thins out and gets very fragile and breakable.

According to the American Academy of Dermatology, an average person loses anywhere from 50 to 100 strands of hair each day. This may seem like a lot but keep in mind that it’s normal to lose and re-grow hair. However, when you aren’t seeing any re-growth, then it’s typically a sign that you may have an issue with your hair.

Most people don’t even notice the 50 to 100 strands of hair that they usually lose every day. With systemic lupus, the situation can be very different, with the loss of hair much more dramatic and noticeable.

It’s not a secret that I recently experienced hair loss after my most recent flare up. I didn’t speak about it much as it was happening, but on March 15, 2013 after months of shedding, loc’s breaking off, and obvious balding around my edges, I decided to BC aka Big chop.

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I went to see my home girl Camille, Owner & Natural Hair Stylist at Noiree Salon in Silver Spring, MD and had her to take it off. She seemed a little hesitant, saying that she would take me shorter but I didn’t have to BC. I said NO- I’m ready- TAKE IT OFF! In a matter of 5 minutes my two strand twists were laying in a pile on the salon floor.

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The previous year, I suffered hair loss and had my cousin April cut my bra strap length hair into a Diva cut.

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This time, I was ready to “let it go” (in my Keyshia Cole voice). My TWA has changed my looks. Co workers barely recognized me when I returned to work, and attendees of my event Cupcakes & Cocktails were surprised at the short hair. I rocked a TWA continuously for 7 years back in the 90’s, but most of the people that I socialize with today had never seen me with short hair.

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I’m still a little self conscience about the bald spots (especially my edges) – but as we all know-sometimes its part of the process (shrug shoulders).

Beginning today I will document my journey as I take steps to re grow my hair (specifically my edges). I’m not seeking to grow my hair a certain length, I just want to re grow the balding spots.

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Check Out These Helpful Tips To Assist With Regrowing Your Hair
Vitamins & Supplements for Hair Growth (Biotin)
  • Few people are actually deficient in biotin, which occurs naturally in bacteria in the gut. Nevertheless, therapeutic doses of biotin – also called Vitamin H or B7 – are necessary to achieve benefits in hair health and rapid growth. It is difficult to overdose on biotin – many supplements come in 500 microgram capsules.
  • Biotin is useful for those who want their hair to grow faster: some claim it can even reverse premature greying if the greying is caused by marginal biotin levels. Biotin can be taken alone or in conjunction with other B-vitamins. The latter may be a good idea if you lead a stressful lifestyle – B vitamins help to prevent stress, which is a cause of hair loss!
fotoflexer_photo-05311Natural Oils that can be used to help promote regrowth
  • Peppermint and Rosemary are commonly used to regrow hair, but must be combined with other oils like olive oil or coconut oil (also good for hair regrowth)
  • Castor oil and Jamaican Black Castor Oil are often used for regrowth because of their thick quality and ability to thicken the hair. Jamaican Black castor Oil
Iimagef your hair loss is mild, try a new haircut
  • You don’t have to BC like I did (that was my personal preference). Long hair is weaker than short, so consider a shorter ‘do’ with layers to hide thinning or bald patches.
  • Wash fragile hair with baby shampoo, and use a leave-in conditioner with sun block
  • Products like Shea- butter and sesame oil have natural UV filtering properties. And while many hair products claim to protect hair from the sun, unless they have a SPF rating or contain a known sunscreen ingredient, these could be just marketing claims. If you plan to be out in the sun for more than an hour, the best hair care tip is to wear a stylish hat or scarf.
  • Avoid adding more stress to your hair from using curlers and alcohol-based styling products, which can irritate sensitive skin.
img_20120518_081708Rock Your Good Hair
  • Hairpieces and extensions can be added into thin areas to create a fuller look. Just make sure that these aren’t too tight, because tension on weakened hair also can lead to hair loss.
  • Wigs come in a wide range of styles, colors, and lengths. Your stylist can custom cut the wig to match your face (and personality). And don’t forget your scalp! Keep it dry to prevent chafing, and remove the wig occasionally to allow your skin to breathe.580474_398811326825199_1106362203_n

Whether you decide to go with a wig or a new hairstyle, remember that there’s no wrong way to deal with hair loss. Everyone has a different comfort level; it should be an individual decision. Stay tuned as I document  my attempts!

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If you have lupus and are losing hair, do NOT experiment with over-the-counter hair loss treatments. Talk to your doctor about treatment options.