sjogrens – The Lupie Chick Project

Tomorrow I’m scheduled for an MRI, CT scan, and Sonogram. To be quite honest, I’m scared I would rather not go to the appointment, but gangster boo (my dr’s nurse) is gonna fight me if I THINK about rescheduling.

I’m getting tired of feeling like my body is being invaded by some sought of instrument or medication. I clearly understand that these tests are necessary for my treatment plan but I don’t have to like it or pretend to like it. I’ve rescheduled these tests 2 x’s over the last 2 weeks. Each time I was previously scheduled, I would feel like a million bucks- no need in fixing something that ain’t broke- right? WRONG……. the very next day after I would cancel the appointment(s), I would feel like negative .50 cents. My mind is playing tricks on me (in my Scarface voice), how can I feel like my ole self-{stepping up in the building like I paid the light bill} to the next day wanting to crawl under a rock. I felt so saucy one day- I actually went to work with a naked (face)-I didn’t wear any makeup. I prepped my face, caught a glimpse of myself and my alter ego said “Your Mz. Sixx Bish!”Rock OUT!!!

I put all the makeup away, pulled my hair up in a bun, whipped out my brand new pair of 5 inch stilettos’ and Naomi Campbell walked out of the house. On my way to work, the late mix was on the Russ Par Morning Show- and they played Biggie!!!! ** Ya’ll know I was wilding out in the car!!!!!- Diddy bopping and fist pumping down route 29.

Fast forward 4 hours

I looked and felt like Wanda

my feet were swollen and aching like I’d been stopping traffic with them, my face looked like I fell head first in a oil slick ( face was GREASY, and OILY) and my -oh -so -fly bun, looked like a busted ponytail done in the dark.

WTH?? Then to make me feel even worse- that gangster nurse at my doctors office called me and “set “me straight about the tests (I kept cancelling).

So, right now I’m (emotionally) eating everything under the sun, dropping a couple of tears, and attempting to pull it together. I’m scared, nauseous, and wish I could take a couple of ciroc shots.

I keep telling myself “Get thee behind me, Satan” as I make arrangements for transportation to/from my appointments tomorrow. I’m feeling weak & I dont want to go. I ask all of you to keep me prayed up and covered.

Venus Williams a seven-time Grand Slam singles champion, pulled out of the U.S. Open yesterday and said she has Sjogren’s syndrome.

Venus said in a statement issued at the Open in New York and reiterated today on ABC’s “Good Morning America”

“I’m really disappointed to have to withdraw from this year’s U.S. Open. I have recently been diagnosed with Sjogren’s Syndrome, an autoimmune disease which is an ongoing medical condition that affects my energy level and causes fatigue and joint pain.” She added: “I enjoyed playing my first match here and wish I could continue but right now I am unable to. I am thankful I finally have a diagnosis and am now focused on getting better and returning to the court soon.”

Sjogrens Syndrome– What is it?

Sjogren’s (SHOW-grins) syndrome is a disorder of your immune system identified by its two most common symptoms — dry eyes and a dry mouth.

Sjogren’s syndrome often accompanies other immune-system disorders, such as rheumatoid arthritis and lupus. In Sjogren’s syndrome, the mucous membranes and moisture-secreting glands of your eyes and mouth are usually affected first — resulting in decreased production of tears and saliva.

Although Sjogren’s isn’t life-threatening, it is an incurable condition where the immune system starts attacking glands that produce tears and saliva instead of fighting infection, according to Arthritis Research U.K. Around a half- million people in the U.K. suffer from the condition, which is usually diagnosed in women between the ages of 40 and 60. The American College of Rheumatology’s website said between 400,000 and 3.1 million people are affected in the U.S.

The exact trigger of the disease isn’t quite clear, Mizutani said {Wesley Mizutani, a rheumatologist on staff at Orange Coast Memorial Medical Center}.”That’s the million-dollar question,” he said. “We don’t really know. There’s probably a genetic component, certainly, but there’s more than that.”Certain antibodies are associated with Sjogren’s, but it seems to need a trigger, like a viral or bacterial infection, for the immune system to go awry.

Once set off, the system can’t really be fixed — but certain steps can be taken to mitigate the symptoms for the vast majority of patients. Keeping eyedrops and a bottle of water nearby are two such easy measures. Brushing after every meal and otherwise good dental hygiene are a must.

More extreme measures can also be taken, from anti-malarial to autoimmune suppressant drugs.

But, Mizutani pointed out, it could be worse. “If I had to choose an autoimmune disease to get, Sjogren’s would be one of the milder ones.”

I’m sending prays and positivity to Venus Williams, like my friends and family have told me ” God is Able”

Get well soon-

Love you Venus xoxoxoxoxoxo

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Category: sjogrens

“Get thee behind me, Satan”

Venus Williams and Sjogren’s Syndrome