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6 Months of Living with Lupus

Wow, where did the time go? It has been 6 months since my lupus diagnosis. I had a doctor appointment Tuesday, and I was informed that I’m stable- not getting any worse, but thus far not any better. No reduction of the meds (bummer), next appointment Jan 4, 2012.

As I reflect on the past 6 months-it brings tears to my eyes. I’ve have several short stays in the hospital, many days/nights of pain, and depression. There were days when all I could do was cry.. ball up in my bed and cry. I see my doctor so often that I feel like we are dating. I know I’m a handful and I know I work his nerves. I’m always full of questions and comments. I just tell him straight- I can’t afford to do all of the things you want me to do! I know it sounds crazy that someone/anyone would say that they can’t afford to do something that may benefit them-BUT I can’t! I’ve made adjustment to my benefits at work (starting with getting the flexible spending account) in which I hope will help me financially with some of the things I need to incorporate. In the mean time, I’m doing the best I can with what I have. It has been extremely difficult for me to accept help. I’ve always been the care giver- not the one being cared for. I find myself ashamed of my appearance (because of the weight gain from the meds along with the scarring on my face). Ive had trouble with housekeeping and cooking meals sometimes-but THANKS to my children and my husband all of which have pitched in and got the job done when I couldn’t.

Some friends have hung in there with me and a lot have fallen by the wayside. That saying “out of sight out of mind “pops into my head. As long as I’m out of sight, I guess I don’t cross their mind(s). The other day my son’s step mother sent me a message on Facebook that said “you’re a fighter- I know firsthand” lol..lol.. That sentence made me laugh uncontrollably. The people that I least expect to hear from are the people that I’m in contact with. The people whom I thought didn’t care about me, have showed the most concern. For that I’m forever grateful.

November 20th my daughter turned 13 years old. Crazy me thought it would be a great idea to have a 3 day (weekend) celebration.

Pretty Girls Rock Party started Friday at 3:30pm and ended Sunday at 6:00pm. All I can say is a weekend of cupcakes, makeup, swimming, food, and dancing left me slaved to my bed for 5 days. I literally could not move. I had a conversation with my body and Lupus. I told them- “look I need for the both of you to cooperate and lean back this weekend. My mini me turns 13 once and I need to be there for her-if either of you act up, or show off there will be hell to pay!!!!!” My feet gave out Sunday afternoon, but all else was perfect!!!!! My daughter was so happy that I was able to participate and hang with the “girls” all weekend.

It’s been 6 months of living with Lupus. I’m determined to make the next 6 months much more enjoyable & pain free. I’m being forced to face one of my fears (water). It’s been demanded (by my doctor) that I begin an exercise regimen. It’s hard to imagine exercising when I’m in constant pain. I’m looking into water aerobics (to help with my joints) and yoga. I have an incredible fear of water (due to a childhood incident when I almost drowned).

I’m hoping that I can get back to wearing my stiletto’s shoes,walking without pain and leave the sneakers for workouts-not part of my daily uniform. I want to wear makeup when I want too-not because I feel like I have too (I’ve recently purchased the clarisonic brush-I’m already seeing results). I will also be doing a makeup over-a do over- a NEW ME!!!!!! So until next time Lupie Chicks-stay healthy and pain free!


** did you notice that my earrings match my jacket? I wrapped them myself using yarn**

antioxidants, aunaturale, autoimmune, awareness, exercise, lupie chick, lupus, miss sixx, moisturizers, relief, skin disorder, stress, womens health

Day 2: Stress relief for younger looking skin

Soothe Stressed Skin-Day 2
by Dr. Amy Wechsler, MD

Relaxing never seems to make it onto the to-do list. But today, relaxing is your to-do list. Stressed skin looks stressed, so keep your psyche and your skin healthy, calm, and clear with these stress-relief tips:

Start Breathing
Try these three breathing exercises. Then, pick the one you like best, and do it at least twice a day for the next 8 days, preferably at around the same time each day. This will help establish a breathing routine that calms you, refocuses your energy, and changes your body chemistry to support well-being from the inside out. So long, stressed skin.

To experiment with these exercises, sit in a chair with your back comfortably upright, feet on the floor, shoulders down, chest open, and hands resting in your lap. Let your abdomen expand with each inhale and contract with every exhalation. You may want to close your eyes and really focus on your breaths.

Exercise #1 — Let it all out.
Take a deep breath through your nose, and let it out easily through your mouth. At the end of the exhalation, silently repeat “la-lala-la-laaah,” which effortlessly extends the exhalation, releasing more air from your lungs. Feel your abdomen inflate with the next inhale. Do 5 times.

Exercise #2 — Take a pause.
Inhale and exhale through your nose, mentally counting “in-two-three, out-two-three,” and then “pause-two-three.” During the pause, don’t breathe in or out; just rest comfortably. Do 5 times. Over time, increase the count to four (“in-two-three-four, out-two-three-four”), then to five, until you reach a number that’s comfortable to you.

Exercise #3 — Hold it.
This technique can help you dial down a stressful reaction to upsetting news and can help you fall asleep, too. It takes a little practice, but people who use the technique swear by it. It’s the four-seven-eight breath, a favorite of health guru Andrew Weil, MD.

Place the tip of your tongue just behind your upper front teeth; let it rest there gently for the entire exercise.

Exhale completely through your mouth, letting the air make a whooshing sound as it passes out.

Close your mouth, and inhale through your nose as you mentally count to four. Let the breath fill and expand your abdomen as you inhale, and then hold your breath for a count of seven.

Exhale through your mouth with a whoosh to a count of eight. That’s one complete four-seven-eight breath. Do four times. To keep stress in check, do at least one of these breathing exercises twice a day.

Relax and Unwind
Here are some ideas to help you destress:

Connect with friends. Pick up the phone and call someone who can make you laugh, take a load off your stress level, and help you put things into perspective. Later in the week, you’ll have dinner with friends, so maybe call someone you want to invite.

Book a massage. If you can get in for a spa treatment today, great! If not, you have something nice to look forward to.

Have sex. Yep, sex (with a partner or on your own) can help relax you and get your skin glowing again.

Continue to Simplify Wash your face morning and night using the tips from Day 1, and stick to your new beauty-sleep routine.

amazon, antioxidants, aunaturale, autoimmune, diet, disease, flaxseed, hair loss, immune system, iron, lupus, lupus diet, miss sixx, Omegga fatty acids, supplements, vitamins, womens health, you tube

The Lupus Diet

While surfing the web yesterday for my post Eat this… Dont eat that! I came across a site titled
“Can Lupus, and Lupus Hair Loss be Tamed with a Lupus Diet?”. I found this to be very interesting (1.) I have Lupus and have never heard of a Lupus diet, and (2.) My hair is falling out 😦

As I began to read the article, I was happy to see that a specific listing of foods was provided to help boost the immune system. I was never one to count calories nor could I rattle off the top of my head what food are enriched in specific vitamins (outside of the obvious- vitamin C- oranges, etc). So the list with specific foods, I found to be very helpful. After yesterdays posting, I was feeling like there werent anything I could eat- and I was hungry. With the list below I now feel like I have options!

Top 10 immune system boosters include, which supply the highest levels of these nutrients, are beets, shiitake mushrooms, avocado, curly kale, grapefruit, blueberry, brazil nuts, soy beans, green tea and garlic.

Other top immune boosters include sweet potatoes, carrots, onions, garlic, yams, red bell peppers, tomatoes, rhubarb, pumpkin, chili peppers, avocados.

Cruciferous vegetables, watercress, nettle, spinach, Belgian endive, globe artichokes, arugula, kiwi, pineapple, papayas, mangoes, guava, cantaloupe, passion fruits, citrus fruits, bananas, grapes, berries, rosehips, hazelnuts, apples.

Endive, walnuts, cashews, almonds, pistachio nuts, sunflower and pumpkin seeds, safflower oil, evening primrose oil, sesame seed and oil, aduki beans, oats, wheat germ, quinona, bulgur, rice, corn, kidney beans, lima beans, green beans, lentils, snow peas, turkey, pheasant, duck, chicken, fresh tuna, salmon, anchovy, mackerel.

Shrimp, yogurt, peppermint, chamomile, rosemary, ginger and turmeric. These foods all contain an abundance of nutrients with antioxidant, immune restoring or anti-inflammatory properties.

I realize I have to get serious about what I put in my body. What amounts are safe and just because I like it, dont mean it ok to eat it. I know all things in moderation is best- but my eating habits are CRAPPY- some things I have and will let go COLD TURKEY!

3 Objectives of The Lupus Diet

Proper diet is required not only for people with Lupus but there are some special considerations when it comes to Lupus dieting. There are three objectives of the diet and these are to counteract steroid therapy, to stock up on your potassium, and to replace the nutrients that you have lost. for you to be able to reach these objectives here are some information that you will have to keep in mind.

Control your fat Intake
For the Lupus diet, you have to control your fat intake. The omega-3 fatty acids that are found in fish oils are also proven to lessen your risk of encountering coronary artery diseases. this Lupus diet is very important to those who are high risk for these certain conditions such as women with Lupus, or those who have hereditary tendencies.

Recommended Vitamins And which to Avoid
Taking in supplements when you are in a Lupus diet should not be done without consulting with your physician. There are certain vitamins that are not recommended for you since these will worsen your condition such as Vitamin a which can exacerbate autoimmunity and Vitamin E which will induce the remission of Lupus. on the other hand, there are helpful vitamins too such as Vitamin D which helps in managing osteoporosis, Vitamin B12 and folic acid that treat some forms of anemia. Herbal supplements too should not be taken without a doctor’s prescription, since there are some that are totally restricted for you.

The food Avoid
Alfalfa is one of the foods that should be totally avoided in a Lupus diet since this one can trigger symptoms that are Lupus-like or more commonly referred to as Lupus flares. these Lupus flares induced by alfalfa can be fatigue and muscle pain, blood test result abnormalities, nephritic problems and changes with how the immune system functions. Researches have found out that L-canavanine, an amino acid that is found in alfalfa activates the immune system, and can aggravate inflammation. Not all Lupus symptoms can be eliminated but many symptoms can be controlled to at least have a normal live.

If you have tried the Lupus Diet- comment and let me know how it worked-or didnt work or you.

Related Articles:

Can Lupus, and Lupus Hair Loss be Tamed with a Lupus Diet?

Lupus Diet – How to Make Your Lupus Symptoms Better

Disclaimer: The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

antioxidants, arthritis, autoimmune, blog, cure, fish, flaxseed, iron, lupie chick, lupus, migraines, miss sixx, motherhood, Omegga fatty acids, supplements, vitamins, womens health

Eat This… Don’t Eat That!

As some of you know, I’m an F-O-O-D-I-E!!! I love all types of food. I’m accustomed to eating what I want, when I want it! My faves- buttery soft, mouth melting buttermilk red cupcake(s) topped with a dollop of cream cheese, a smooth rich, and dense NY Style Cheesecake topped with fresh berries, and extra crispy, golden brown SOUTHERN(deep)fried chicken (with all the fixings on the side). yes, I love food- #dontJudgeMe! Since being diagnosed with Lupus, I’ve been told to eat this.. don’t eat that.. Then of course everyone under the sun want to suggest what I should and should not eat. Overwhelming is an understatement- and I’m HUNGRY!

I dont enjoy my food or feel satisfied after I eat. I’m always worried that I ate the wrong thing, did the hubby put something in the food I wasn’t suppose to have[he cooks a lot of our meals during the week], what if I get sick, what if I get a flare up? With all of that swirling around my head, I can’t eat or enjoy my food.

I took to the Internet to see what other Lupies are eating- BIG MISTAKE! I’m more confused than ever. My doctor is suggesting that I do a gluten free eating plan. Others have suggested I do a vegetarian eating plan (the two conflicts with each other). I’m making an appointment with a nutritionist and hopefully will have a clear understanding what I should and should NOT be eating.

In the mean time, some of the common foods I’ve discovered that I Should Not Eat are:

Alfalfa seeds and sprouts should be avoided because they contain an amino acid called L-canavanine. This amino acid can aggravate the symptoms of lupus.

Animal meats, dairy, eggs, nori seaweed, and peanuts contain arachidonic acid. When used excessively, arachidonic acid can actually be destructive to the body.

Beans and mushrooms contain amines and hydrazines, which increase lupus symptoms.

Oils like corn, poppy seed, safflower, and sunflower, cured meats and hotdogs actually encourage lupus episodes because they contain components that have been proven to trigger lupus symptoms.

Eggplant, peppers, tomatoes, and white potatoes, called nightshade vegetables, should be avoided because they contain solanine, an agent that triggers inflammation and pain common to lupus sufferers.

Sulfur-containing veggies such as cabbage, brussels sprouts, broccoli, kale and cauliflower. These may be difficult for many lupus sufferers to digest without upset.

Fats. It’s suggested fat reduction can produce up to a 25% improvement in the aches and pains of a lupus patient.

Herbs like andrographis, echinacea, eleutherococcus, garlic, ginseng, and Panax should be taken with caution since they are known to increase autoimmunity.

Iron should come from food, not dietary supplements because it could promote joint destruction, pain, and swelling.

To Summarize-Don’t Eat This!

  • Caffeine, dairy, foods high in saturated fat, trans fat, and cholesterol
  • Red meats and high fat meats like organ meats, and dark meats.
  • Alcoholic beverages, salty foods, sugar sweetened beverages, candy, snacks, sweets, and alfalfa sprouts.

You should Eat THIS!

Foods high in iron. Eating leafy green vegetables, fish, and lean meat like liver can help offset your risk of anemia. Many breakfast cereals are also fortified with iron.

Fish. Omega-3 fatty acids, which are found in fish like salmon, mackerel, sardines, and herring, contain natural anti-inflammatory substances and may help reduce swelling and inflammation associated with systemic lupus. Your lupus diet should include plenty of fish.

Antioxidants. Many fruits and vegetables are high in antioxidants, which are natural healers. Berries, apricots, and sweet potatoes are especially good sources.

Vitamins. Vitamin E, zinc, vitamin A, and the B vitamins are all beneficial in a lupus diet. Vitamin C can increase your ability to absorb iron and is a good source of antioxidants.

To summarize-Do the following!

  • Include: chicken breast, lean beef, wild salmon, herring, mackerel, sardines, anchovies, rainbow trout, tuna (canned light), crab, oysters, tilapia, cod, pacific oysters into your diet
  • Remove skin from poultry because that is where the most saturated fat is located
  • Look for lean meats around 99%
  • Broil and grill vs. pan fried with oil, deep fried, and breading.
  • It is important to incorporate fish into your diet around 3-4 times a week
  • Practice portion control – meat should not take up ½ of your plate, it should be more like ¼
  • Beneficial fish oils to consider include: evening primrose oil and flaxseed.
  • When you are thirsty, replace soda and tea with water

The Lupie Chick is H-U-N-G-R-Y! If any of you have any advice or any recipes please share.

Disclaimer: The information included on this blog is for educational purposes only. It is not intended nor implied to be a substitute for professional medical advice. The reader should always consult his or her healthcare provider to determine the appropriateness of the information for their own situation or if they have any questions regarding a medical condition or treatment plan.

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Vegatable Glycerin

What is it Vegetable Glycerin?

This is a versatile all natural product with an extended shelf life. It is a carbohydrate made from vegetable oil, often palm or coconut oil. It is water-soluble as well as hypoallergenic. Not only is it safe for use in cosmetics but ingestible as well.

Vegetable Glycerine is a clear, colorless, and odorless liquid with an incredibly sweet taste having the consistency of thick syrup. It is used as an agent in cosmetics, toothpaste, shampoos, soaps, herbal remedies, pharmaceuticals, and other household items. Because it is soluble in both, water and alcohol, its versatility is a major benefactor in its purported growth and popularity within the manufacturing sector. It is invaluable as a natural source ingredient with emollient like properties which can soften and soothe the skin and it assists the outer epidermis in retaining moisture. This helps to explain why it is one of the most popular cosmetic additives used today.

Glowing Skin Benefits

Vegetable Glycerin will help your skin by aiding with moisture retention that is so vital to skins health. We damage our skin with nature’s elements, make up, and water everyday. We use cleaners that contain drying agents and synthetics. We dry skin to the point of being visually flaking, peeling and look dull.

The anti-aging properties of vegetable glycerin helps keep that healthy additional moisture locked into the skin. The result is soft, smooth, silky skin that is radiant and younger looking.
Whether it is young, hormonal skin changes or mature skin the advantage of using this all-natural product will be obvious almost immediately.

Battling Acne

The skin being clean and properly moisturized prevents acne. There are commonly adverse effects such as redness or irritation with the common chemicals used in skin products. Vegetable glycerin is hypoallergenic and ideal for all skin types. There is a visible difference in skin when using these acne cleansers and moisturizers.

Preventing Acne

The antibacterial properties will keep pores clean from clogging debris that causes acne without the inflammation that can occur from using unnatural products.
Healing Acne:The same antibacterial properties in Vegetable glycerin will aid in the healing of acne after it has surfaced without undesirable or harmful effects.

There are very few products on the market today are not only as affordable but also as adaptable to your skin type as Vegetable glycerin. This acne and anti-aging solution is the answer to many dilemmas over what products are safe and effective for all skin types and ages.


Most glycerin recipes that I come across are

3 parts aloe vera gel
1 part vegetable glycerin

combine the two and mix well, use as a hair moisturizer. I have also used this as a facial moisturizer, it works you do need to refrigerate the concoction though ( its the aloe vera) there are also other variations such as a

natural hair spritzer

8 ounces distilled water

1 teaspoon aloe vera gel

1-2 drops of vegetable glycerine

1-2 drops essential oil

15 drops grapefruit seed extract

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OCM Cleaning Method

The Oil Cleansing Method

Today I decided to wash my face with olive oil and castor oil mix. I did a google search on natural facial cleaners and moisturizers after I broke out ONCE a gain with white heads. Of course I was itching to try it. I asked a few co workers about it and they were very informative. They provided and had mixed reviews; One co worker stated that she broke out around her hair line ( which was a concern because at the time, I had several white heads on my forehead and hair line), a second co worker raved about it and lets say she has the most beautiful skin I’ve ever seen. So I figured since I had the products at home in my make shift chemist lab ( the basement) I had to do it. Results:I like it. It left my face tight like I had washed and toned my face but still smooth and not dry looking. From the reading that I done that is probably the castor oil as that is suppose to be the one that pulls out the impurities.

What you need:
  • Wash Cloth
  • Extra Virgin Olive or Sun Flower Seed oil
  • Castor Oil
  • Flip top bottle/Container to keep the oils premixed.

The basic combination of oils for OCM is Extra Virgin Olive Oil (EVOO) or Sunflower Seed Oil and Castor Oil. The olive oil is for moisture, Sunflower Seed Oil has a more luxurious feel for massage. It sinks into the skin better, aiding the castor oil in transportation deep into the pores and allowing it to draw the dirt and grime to the surface of your skin where it can be wiped away. and the castor oil is the cleansing part. If you have dry skin, you would want to use more olive oil than castor oil. Say 75% olive oil, and 25% castor oil. Oily skin would be the opposite: 75% castor oil, 25% olive oil. I would start with 50/50 when you first start and then adjust.

The OCM Method:
1. On DRY skin, massage the oils all over your face and neck. Do this over makeup, dirt, whatever else is on your face. Take your time and really massage it in.
2. Take your washcloth and wet it with hot, or very warm water (the warmer the better so it can dissolve the oil better, but don’t burn yourself.) Wring it out and then drape it over your face. (This is steaming the pores) do this a couple of times.

3.As the washcloth cools, start wiping the oil off of your face. Rinse the washcloth and repeat as much as necessary.

4.After that, you can rinse your face in cool water.

5. If your face feels tight, you can apply your moisturizer. If it feels good, you don’t need to. You don’t have to use this method every time you wash your face. You can just do it before bed, or in the morning. I do it daily right before I shower. You will be very surprised that this actually works! Castor oil is known to be an excellent skin cleansing agent, but it is too drying for some skin. Extra virgin olive oil is rich in antioxidants and is an excellent moisturizer. Olive oil renews the skin, but it can be too fatty for oily skin types.

6. mix and store my mixture in a clean four-ounce flip-top bottle for convenience. When you go to replenish your oil blend, I suggest cleaning your bottle thoroughly with dish soap or the dishwasher. Better yet, if you can replace the bottle, this is ideal. We want to be extremely cautious in introducing bacteria to the bottle.